I know a lot of people are going to write about how amazing the Team StarKid Funtastic Slamaganza For Charity was. And I’m not going to even go there — it was my favorite, of all the shows I’ve been to, which admittedly is only a few, and I loved it.
But sick kids and hospitals are both things that really get to me, so that’s what I’m going to write about. The “For Charity” part of the show. Lame, I know, but that’s how I roll or something.
See, I work all summer with some of the most amazing kids you’ll ever meet, out at the archery range at a camp. I had the misfortune of rooming with the medic my first six years at camp, right next to the medic station, so I got to meet every sick, dying, and medicated child in camp, everyone with an oxygen tank, a daily injection…
And especially the ones I met my first year out there, they just made a huge impact on me.
Of all of them, though, Steve* was the one who I thought of, at the Slamaganza. The kid who even all these years later, talking about makes me feel like crying. I’m not going to lie – when they showed a video about the charity at the event, when they had these tiny children all hooked up to oxygen and IVs, all I could think about was Steve, and that just choked me up like none other. I didn’t cry – I don’t cry – but I could feel that familiar sensation, like someone driving a nail into my heart. I couldn’t look at the paintings they were auctioning, or at the screen with images they had next to it, or even any of the charity information, because of Steve, and my sister’s cancer-ridden fiancé, and my ex-boss, who is just starting his cancer treatment.
Steve’s not the only sick kid we’ve ever had come to our camp. Or the only one to die. But he was special to me, and I was special to him, and some people you just don’t forget.
He had CF, and in the mornings he’d come down to the med station, sit with this vibrating vest on to clear up his lungs, hooked up to all these things. He’d laugh and make jokes even though it had to have hurt, and he was really just this radiant kid. I don’t even know if I can explain how very warm he was, just, to everyone, even when he was hooked up to oxygen while other kids were coming in just to bandage a scrape
One year he came to camp and he was just so sad. I’d never seen this kid really down before, but I swear, the look was like someone had skinned his puppy and made him eat it for breakfast. Just, heartbreaking.
He came over to me and hugged me right around the waist, and said that it was his last year at camp, and this kid, he was maybe nine, and just short as anything, and I swear I could hear his heart ripping itself into pieces,
They were moving for his health, they were moving to somewhere warm and dry. It was supposed to be better for his lungs, for his life. He was supposed to get to grow up, and send us post cards about how he was doing, and so we spent all our spare time telling him about how amazing it was going to be, where he was going. How much fun he’d have, how the new people and place would be this amazing adventure. We were all looking forward to hearing from him, and sending him postcards of our own, and I don’t think there was a person on staff that didn’t just adore him.
There’s this one open program time when I’m not back at my archery range. I hung out at the craft station making beaded necklaces with the kids, and he spent the entire time there, working on this ridiculous necklace, with every pretty thing he could find, all strung together in knots and lines. It was hideous, but he put so much love into it, so much time, he just thought it was the best thing anyone had ever made, and I think that was infectious, because now I think it’s one of the prettiest things I’ve ever seen.
I thought he was making it for his mother, or a sister, but at the end of the week he gave it to me, and told me every bead was for a happy time we’d spent together at camp, and he went through and he told me about all the memories he had, even things that to me were nothing – the time I let him cut in the lunch line, the time I gave him a hi-five walking up the stairs.
He made me promise I’d remember him, and all the happy times, and not be sad because he was going to grow up, and come back and visit us some day.
We gave him the camp address, so he could send us post cards, and we all said goodbye, and he gave me this stupid letter, about how he was going to love archery at his next camp, but that it wouldn’t be the same without me, and so he would like it a little less, and just thinking about it is making my hands shake a little, because as stupid as it all is, as dumb as it is, and as long as it has been…
We got a phone call not long after camp that summer, and even writing this much, even just thinking about it as far as this, it kills me. Steve passed away while on a camping trip, before ever leaving Alaska. His parents were always so, so careful. He always had everything he needed – so much more – but they left out one thing, one vital, life-saving thing, and he didn’t make it to the hospital. His lungs couldn’t handle it, and he passed away, out on an adventure.
His parents called to thank us, because the one thing he spent his last few years talking about the most was how happy we made him out at camp, and how much he cared for all of us. He worried about us, about us not having fun without him, about us being sad he was gone.
We were a bright moment in his life, and even if it does make me cry like an idiot when I think about it, I still have his necklace, and the goodbye letter her wrote me.
So the Slamaganza, For Charity. As fun as it was, as amazing as it was, I’m not going to talk about it. Possibly ever. Because if I think too hard about why we were there, and what Team StarKid was raising money for, I’ll cry again.
And honestly, crying makes me feel like such an idiot.
*names changed to ensure I get to keep my job – because let’s face it, I love it.
Full disclosure, I had major eye surgeries from infancy up through sixth grade. I hate hospitals and I’m glad people are making an effort to make them less sucktastic for children. Here’s a link to Snow City Arts, the charity in question: http://www.snowcityarts.com/home.html Take a look at it, maybe donate something.